Appalled by medical appointment/treatment

I met with my primary care doctor today to discuss a lingering cold that was quickly turning into a sinus infection, and to request a referral to an adult Nephrologist. By the time I left, I was very disappointed in the way I was treated. It was a quick reminder why I avoid seeing doctors in the first place.

First, the nurse was short and curt, asking how I could have been diagnosed with Polycystic Kidney Disease if I had not been in to see Dr. Williams for such a long time. Then, when I explained that Dr. Williams had ordered the genetic tests based on a conversation with Children’s hospital staff, and that rather than reviewing the positive results with me himself, he had his front office staff arrange for me to pick them up, she still seemed very confused. I actually had to show her in the file where the test results were stapled and where Athena Diagnostics detailed the diagnosis. I then told her I was surprised that Dr. Williams did not call me to discuss such a serious positive test result in person.

I could hear the nurse talking with Dr. Williams before he entered the room. He too was short, and rude. I quickly had to re-explain everything to him again, and then request a referral. I was very disappointed that he had no idea what I was talking about. How can a doctor receive a positive test result, and not even know anything about it. Isn’t that what a primary care doctor is supposed to do….manage your medical care? When I explained that Amanda’s pediatric Nephrologist reviewed the Athena test results with me and suggested that I see an adult Nephrologist to discuss the drug trial programs, he actually got a smirk on his face and said, “it may not work, it is just a trial you know.” All of his answers after that were sarcastic.

Anyway, I did at least leave with a referral and a mental note to myself to find a new primary care doctor a.s.a.p! Clearly, it is up to me to manage my own medical care, and when I finally do take the time to see my doctor for advice, I would rather that they skip the rude sarcasm.