I realized while viewing my blog recently that Amanda is not so much a little girl anymore. She has grown a lot since I posted the original pictures.
When this journey into the discovery of PKD first began, Amanda was still in middle school...she is now a Senior in High School.
In light of the fact that the doctors were originally seeking cancer when they discovered that she actually had PKD and Cutis Verticus Gyrata, I am VERY thankful to see her grow and mature into a young women.
While various symtoms of her health issues plague her on occasion, she is doing extremely well in school and now coaches competitive gymastics in the afternoons.
3 comments:
I was looking up info about PKD when I saw your blog. My husband was diagnosised 2 years ago now, but we just found out that our 10 year old son has it also. We found out by having test run for things that we thought had nothing to do with PKD. Apparently people can have all kinds of side effects. The doctors thought it was leukemia or lymphoma. He even had bone marrow taken from both hips before they started looking for other causes to his thrombocytopenia and leukopenia.
It is nice to read someone talk about how they feel dealing with PKD in their child. It also gives me hope to read that she is still doing good.
Polycystic Kidney Disease is a kidney disorder in which numerous cysts are formed in the kidneys. In such disorder inflammation of the kidneys occur because of the fluid buildup in these cysts.
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